Câncer infantojuvenil: Desenvolvimento de um registro hospitalar informatizado para utilização em sistema de tomada de decisão em saúde

Abstract

Considered a public health problem, cancer is a chronic degenerative disease with increasing incidence and mortality rates worldwide. Although it is considered rare among individuals aged zero to 19 years, cancer in children and adolescents is a diagnosis with great biopsychosocial repercussions for patients and their families and a cause of morbidity and mortality that is often neglected in several countries. The use of health information systems with increasingly sophisticated technologies has been a tool of great importance in the progress made by the scientific community in coping with various diseases. In this scenario, patient records can act as a valuable tool in understanding the course of the disease, variations in treatment and outcomes. In view of this, the aim of this study is to develop a computerized hospital record for storing multidisciplinary data on children and adolescents with cancer. The study took place at the oncology unit of the University Hospital of the Federal University of Campina Grande, using the Research Electronic Data Capture (REDCap) software, a secure and free web application for the development of the hospital record. It is known that even in environments with limited resources, it is possible to have access to quality information for coping with childhood cancer, through information technology solutions, such as the REDCap platform. Future studies can be carried out with the cooperation of several institutions that treat children and adolescents with cancer, providing a robust database for conducting clinical research.